Brian and I also had a great night last night. We, for the first time, were able to attend a CCVI parent group. The topic-local resources- is timely since we are surely losing our medicaid as her secondary insurance in two weeks...unless, of course, there happens to be some inexplicable reason to regain it as what happened last year. We can always hope. At the very least Children's Mercy financial aid kicks in and pays for the rest of everything there--meds, therapy, hospitalization, etc... Amazing, isn't it? All we would be stuck with is what is left over after our primary pays on her oxygen and food and monthly supplies delivered to the house AND medications and services from St. Louis Children's. I will also be knocking on their financial aid's door soon begging.
I digress, so we had such a good night last night because we met some great families with kiddos just like Olivia. One mother actually had a son about 6 months older than her with the same general conditions rolling around in a Kid Kart in the same exact color! They met in the hall and exchanged waves before we left. We love our friends and the support that you all are, but it is something different to see someone whose family looks just like yours. We hope to be running into them again soon. Also, during the meeting Olivia played with the teachers and other kids in childcare. We have NEVER left Olivia with anyone but a handful of trained babysitters. Yet, these people were totally qualified and made us feel so at ease. What a blessing both Children's Mercy and CCVI are to us. We can only hope to one day say an appropriate "thank you". Speaking of, visit the last post if you haven't so you can either run in the Trolley Run with us or donate in Olivia's name.