Ok, so I swear I have some really great pictures from the last few weeks but my computer is conspiring against me, so despite my many attempts to put them up on the blog for you, they will have to wait for another day. But I do have something I want to tell you...
Today, on our very overdue date, Brian and I wandered into Barnes and Noble on the Plaza--which is convenient because we happen to have gift cards there. Thank you, Santa. I needed to get a planner, but I also wanted to check the "children with special needs" section which I am usually disappointed by. On all other occasions the total of the books in this section address mostly ADHD and Autism Spectrum Disorders. All important information, but not helpful for our specific situation. Today, though, I found a welcome change--I think.
I bought a book--memoirs of a woman who was a mother to special needs boy much like Olivia. He had Cerebral Palsy (probably the closest diagnosis we will get to Olivia), a seizure disorder, but he was also quadriplegic. I was so happy to see it, like it was a story about a family member or something. I had to buy it.
I think Brian thinks I'm crazy. Of course the book is going to be really sad. The boy, Jesse, died in his sleep when he was 17, but the story is about his life. To me, the sad parts are worth wading through emotionally to enjoy the laughs, and the back jacket promises plenty. I hope it feels like a close friend. We will see. I'm sure my all empty day tomorrow will allow for plenty of reading/crying time.
Oh, here's the link: Knowing Jesse. Also, good luck to Brian and our friend Wes who will be freezing their tushes off at the Chiefs playoff game tomorrow. I was more than happy to give up my ticket and keep my warmth.