Saturday, January 8, 2011

New Book

Ok, so I swear I have some really great pictures from the last few weeks but my computer is conspiring against me, so despite my many attempts to put them up on the blog for you, they will have to wait for another day. But I do have something I want to tell you...

Today, on our very overdue date, Brian and I wandered into Barnes and Noble on the Plaza--which is convenient because we happen to have gift cards there. Thank you, Santa. I needed to get a planner, but I also wanted to check the "children with special needs" section which I am usually disappointed by. On all other occasions the total of the books in this section address mostly ADHD and Autism Spectrum Disorders. All important information, but not helpful for our specific situation. Today, though, I found a welcome change--I think.

I bought a book--memoirs of a woman who was a mother to special needs boy much like Olivia. He had Cerebral Palsy (probably the closest diagnosis we will get to Olivia), a seizure disorder, but he was also quadriplegic. I was so happy to see it, like it was a story about a family member or something. I had to buy it.

I think Brian thinks I'm crazy. Of course the book is going to be really sad. The boy, Jesse, died in his sleep when he was 17, but the story is about his life. To me, the sad parts are worth wading through emotionally to enjoy the laughs, and the back jacket promises plenty. I hope it feels like a close friend. We will see. I'm sure my all empty day tomorrow will allow for plenty of reading/crying time.

Oh, here's the link: Knowing Jesse. Also, good luck to Brian and our friend Wes who will be freezing their tushes off at the Chiefs playoff game tomorrow. I was more than happy to give up my ticket and keep my warmth.


  1. Please don't lose any fingers or toes at the game, guys! I only want to be that cold if the word skiing is attached (sorry Chiefs). Have a great time! Love you all! M (and D)

  2. you were smart to give up your seat!

    i hope the book is sweet and encouraging to you. it's hard to walk through something when you feel kind of alone in it(as far as other parents dealing with the same stuff).

  3. Kel, there's a book that's been floating around the school that many highly recommend despite its questionable title... "My Baby Rides the Short Bus". "My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities is an anthology of articles written by parents about the unique joys and challenges of their families."...
    On another note... snow day tomorrow??? Keep your eye on the screen crawl!